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This disease doesn’t come
with a
manual.~Kate
IT
WILL SOON!!!! Thanks to
I am doing my best to turn this site and some of my theories into a
book but it's taking time. You might not agree with them and that's
ok... but if you want to be heard in the first publishing you better TELL ME NOW!!!
Clinical Modification (ICD-9-CM) Arachnoid cyst(definition of arachnoid
cysts)
If
you want to see an AC surgery then click here.
If
you find ANY information on this site that has benefited you please
donate at least $10 or access...
hand over some bucks!
Please
read through the site that you can before calling.
No we have no money to hand out
No we can not help you with health insurance
No we can not tell you everything is going to be OK
Yes we can provide a support network
Yes we can provide patient education
Yes we can provide info to show your doctor
Yes we can help you understand your MRI
We can
only grow if you help by donating
and submitting your story
and if you have no money and only time to donate it would be much appreciatted!
This site is PG-13. We use strong language and communicate as adults
with the ways we suffer. If you can't take it quit reading now. It's
not my fault we are ignored by the medical community so don't blame me
for the harsh realities or if you think you will never become
symptomatic because by the time you do you will wish you had done more.
This
site is unique as it is run by people that suffer from this ailment. It
is not to take the place of medical advice but to offer you emotional
support. The stories you
read range in age (as this disease progresses) and we attempt to
educate parents by seeing what we have gone through but don't have the
ability to communicate as brain healthy people do. If you want sunshine
blown up your bum then talk to your doctor but we hope that your child
will never suffer in the manner that we do which is why this site is
here.
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CatherineClay.com
This
site is unique as it is run by people that suffer from this ailment. It
is not to take the place of medical advice but to offer you emotional
support and advice. The stories you read range in age (as this disease
progresses) and we attempt to educate parents by seeing what we have
gone through but don't have the ability to communicate as brain healthy
people do.
It's an ongoing battle. I get several new letters a week from people
always telling me their doctors say "it's all in your head." Perhaps
you receive a phone call from you physician dismissing your cyst as
nothing. Perhaps
you were born with it (my favorite article).
Perhaps you got it from a car accident or a soccer ball.
"They"
tell you there is nothing wrong with you but you are tired, your back
hurts, your neck is stiff and your body aches and you have moods swings
that would put Linda Blair to shame.
Don't
kid yourself. You really have something in your brain that is causing
you to have inexplicable problems. You need a team of specialists that
will help treat your problems and not dismiss them as your imagination.
They will often tell you to see a psychiatrist that there is nothing
wrong but that's because they are ignorant and don't understand what
it's like to live with a rare neurological disorder with no known cure,
very little treatment and not enough information.
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