Center of the Brain

Hi. My name is Tracy and I live in Valleyview Alberta Canada. I am 28 years old and was diagnosed with an arachnoid cyst behind my left eye.

It has caused me to have grand mal seizures and pressure behind my left eye.

My neuorologist has told me not to worry about it.

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when I was much younger, I lived out in the woods. I had a a neighbor with an old fence, and from the fence there was an old shed. I used to walk acrossthe fence every so often never caring about the drop if I fell. Then the daycame I tripped and fell.

I fell into a web, a web so large it went across the entire length of the fenceand shed, about 2 to 3 feet deep. I was covered in spiders, I was bitten by apoisonous one. I don't need to tell you that I'm terrified of spiders.

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This all started March 17th 2000. I was against my son from having this inoculation, I was made to feel like I was a bad mother if I didn’t give it to him. My son was given, prevnnar. My husband took a tissue and wiped off the serum and blood that shot back out from the wound. He had cuts all over his hands because he’s a contractor. 3 days later my husband was sick with a fever of 105. He couldn’t lift his head so I suspected it was meningitis because that was one of the bacterial infections in the inoculation.

He was home for a month because he couldn’t move. They told us to go to an infectious disease specialist but he didn’t go. The fevers stopped but the headaches didn’t.

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Hi Catherine,

I was just diagnosed as having an arachnoid cyst.  I have to go back for another scan, because the doctor wants to make sure this is what I have.  I am 41 years old and have been getting all kinds of weird things happening to me that I couldn't tie together.  I almost had a nervous breakdown, I am sure, in trying to figure out what the hell was wrong with me, and I'm not even sure if everything I have is due to this. 

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Hi my name is justin i'm 33yrs old and live in manchester england, not the best place in the world to find out you have an arachnoid cyst, but from reading the stories on this site it's not only one.

I've only just found this site and it's the best around, it's helped me alot so i've decided to help others with my story.

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My name is Yvonne from Manchester United Kingdom. I finally came across your page, by searching on the worldwide websites for my disease. There seems to be nothing in the Uk, so I would like to tell my story to you.

I am 49years of age and 3 years ago I was diagnosed with an Arachnoid Cyst underneath the brain and lying on the optic nerve. For nearly ten years I had suffered with headaches and frequent trips to my doctor, resulted in his diagnosis, of Migraine, Depression.

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is 12 years old, the youngest of 3.  My first son Michael died of non hodgkins lymphoma 14 years ago when he was 4.  Meagan was born just short of 2 years of losing Michael.
 
Anyway, Meg has been in sever crippling bouts of pain for over 2 years now.  At first I thought it might hormonal just like many of you probalby thought.  But soon into these horrific ordeals I realized that this was something bad.  I pushed to get her a MRI.  Thats when they came back with Arachnoid Cyst, hers is 4.9cmx4.9cmx3cm, its pushing the left cerebellum to the front of her head.  Its also eroding the back of the inside of her skull where it sits.
 
Her neuro guy in jersey has emptied his bag of tricks.
 
Now I feel like we were just kicked to the side of the street. 
 
On a more positive note I dod speak with Karrah from Dr kellys office in LA.  I'm send the reports and the films over.  And they will get back to us with their opinion.
 
I know the people in jersey think she is anxious and bring the pain on herself.  That's nuts.  This little girl once fell off a monkey bars broke here wrist/growth plate when she was visiting friends in Long Island and didn't mentioned the arm to a soul.  She lived thru the rest of her vacation with this broken arm.  I know she is one tought cookie.  There is no way she is exaggerating this pain.  If anything, Meg is down playing it for my sake.
 
I am so angry right now I could scream, but I know from past experience that it wont do any good.
 
Can anyone tell me if they know of anyone who has had base skull surgery, I am looking at this Dr JHO he does a nostril approach with minimal invasive techniques-fenestration.  I am so desperate to know many things.
 
God Bless you Catherine & entire AC family
 
Maureen

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Hi:
 
What a wonderful website!  I used to live in californina.... Okay, here is my deal.  Growing up, I had major ear infections... this is not irrelevant to my story, you will see.  I used to around age 14, see things move that were not moving, such as drapes, blinds, fans, etc.... thought this was due to one acid trip, so, I thought nothing of it.  Fast forward to age 30... had a child.  Started having ear problems, such as crackling, hearing loss, major dizziness, headaches, and passing out a few times.  Thought nothing of that, since it went away.  9/2005...... the drapes are moving again, but this time, if I stare at anything for a short period of time, it moves, kind of waves... wavy movement, dizziness again, now just turning around too fast will cause that. 

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I have been recently diagnosed with an arachnoid cyst, which at first was termed a "benign cystic tumor" but after review from the radiologist, arachnoid cyst is the new diagnosis. I am 19 years old.

I have always played sports, reguardless of the extereme heat or whether I was tired, I kept playing. I began noticing symptoms about 5 years ago while playing basketball with my father. My vision started to disappear, first in spots, then narrowing in from the paripheal towards the center. Needless to say that was the longest five minuites of my life. After going to the doctor I was diagnosed with sports asthma and given an inhalor. It turns out that I also have asthma, but the real problem was ignored.

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2 1/2 yrs. ago I was diagnosed with an Arachnoid Cyst that sat on top of my pituitary gland, and wrapped itself around my optic chiasm.  I had passed out at work and had no other symptoms before this at 39 yrs. of age.  After doing an MRI they discovered that I needed to have surgery.


Since that time I have had 5 surgeries on my head in 11 months and 2 on my belly.  I have 2 shunts in my head, 1 which is in my 3rd. ventrical, and the other which is in my cyst, which is 2.6 cm.

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